A York family's fight to give their son more independence
12:01am 3rd November 2011
(Updated 4:21pm 3rd November 2011)
A York family claim the NHS has stole their son's right to an independent live.
14 year old Tom Arnett from Strensall has cerebral palsy and can't walk alone.
But a £25,000 operation, known as selective dorsal rhizotomy, could change all that if the NHS would fund it.
Health officials say "No."
North Yorkshire and York NHS Trust has declined to comment on its decision.
The National Institute for Clinical Excellence's (NICE) guidance for the use of selective dorsal rhizotomy is inconclusive as the procedure is still evolving. NICE recommends further research.
Tom's mum 35 year old Adele Sullivan has spoke to Minster FM.
“Our only options now are to pay for it.
"We are focusing entirely on the campaign now called The Make A Stand For Thomas Appeal."
The Make A Stand For Thomas appeal has so far raised £1,250.
Campaign organiser and family friend, Clare Inkster, hopes people in North Yorkshire will be generous and help them make a difference to improve Tom's quality of life.
On Saturday (5th November 2011) she's helped to organise a car wash at the Ship Inn in Strensall between 11am and 3pm.
If you can help the appeal, go to justgiving.com/makeastandforthomas or phone Clare Inkster on 07932 392 231.
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